I’ve searched high and low for Autistic surveys but found very few worth mentioning. My quest was to find data representing Autistic voices about topics important to Autistics. I was specifically looking for something that could be both helpful and informative.
I found only two. But they did speak volumes. Most likely everyone has already seen the results of those two but I want to quickly mention them here and offer links just in case anyone didn’t see them.
This first one surveyed nonverbal people for a research paper concerning methods of communication. I found the results educational. I think a number of the insights provided via written-in comments deserve more than just being tucked away into a paper.
The second one was a much larger survey, that I didn’t know about since it was undertaken before I started this blog. It provides a lot of glimpses into the difference between popular beliefs and the actual reality of matters. I appreciate the fact that the results are organized to give relevant groups (i.e. females, nonverbal people, etc.) a voice.
Both surveys are very insightful but I want to hear more from each of the groups. I especially want to hear from the under-represented group of ‘those not officially diagnosed’ that is probably present but their voices aren’t distinguished in the results.
There are things I want to know that weren’t asked. So I created the following draft for a survey that I think could be informative as well as very helpful for people like me.
A PDF version of the survey can be found here: An Autistic Survey.